Multi-part article on what NOT to say to someone with Metastatic Breast Cancer

Multi-part article on what not to say.  This won't tell you what to say, but it will tell you what to avoid and why.  Yes, I hear these things almost every day from someone.  

http://metathriving.blogspot.com/2014/10/october-8-things-not-to-say-part-1.html?m=1

Coping with other people's reactions to Metastatic Breast Cancer

Metastatic breast cancer landscape report released

A report was released by the Metastatic breast cancer alliance to identify the needs of metastatic breast cancer patients.  Hopefully, this is the first step toward things actually improving. The Metastatic breast cancer alliance is an alliance of all the major players in cancer working together.  More info can be found on their website (mbcalliance.org).

Metastatic breast cancer landscape report

Good News and Video

Oncologist told me today that my CT and Bone scan indicate stable disease.  There is some shrinkage, but not enough to qualify officially as regression.  The bone metastasis looks like less to me, but the experts say it has not changed.  Either way, lack of PROgression is an awesome thing.  If it doesn't grow, it can't kill!

During chemo today, I recorded the script for this video one of my mets sisters is making.  It's a just a script we all read and I guess she plans to compile it all and put it out on  you tube to educate.  Here's what she asked us to do:

http://www.insertboobshere.com/mbc-video/http://www.insertboobshere.com/mbc-video/

Here is my submission of me reading the script: