About Me

My Photo
Initially diagnosed June 4, 2009 Invasive Ductal Carcinoma Stage II,Grade II tumor size: 2-3 cm node positive ER/PR postive HER2 Neu - negative Current Diagnosis: Metastatic Invasive Ductal Carcinoma Grade 3 Mets: Scalp/skin, Liver, Spine, Bone ER/PR + HER2/NEU -

Search This Blog

Monday, December 2, 2013

Overcoming Isolation and Exposing Misconceptions

Awesome article on Metastatic Breast Cancer:

Overcoming Isolation and Exposing Misconceptions

From Bridging Gaps & Expanding Outreach for Metastatic Breast Cancer, a press briefing by advocate and metastatic breast cancer patient Lilla Romeo, September 19, 2008


  1. Wow, that is a good article.

    Full of hard, scary statements, and if reading them hits me the way it does, I still can't imagine everything you face up to every single day.

    And see -- it's always hard to know, what is okay to say, what isn't -- but if anything, being afraid to say anything at all would just increase your isolation. However, if I ever say the wrong thing, feel free to kick me.

  2. I really enjoyed this one myself. Not many resources that really go into the emotional/psychological side of dealing with a terminal illness like metastatic cancer. It was nice to hear that it's normal to experience these things. I haven't really had much interaction with others who have this disease. They seem to be rather hard to find. Many people have initial diagnosis cancer and are easy to find, but it's different when you are living with it and not expecting to ever be done with it.


Disqus for Aymz Blog